Tuesday, July 28, 2009

Wonderful sitter found

Thank you all so much for your help. I received 29 emails regarding sitters. I will keep all this info just in case Caren finds a job before the kids go to school. So please know i got all your responses and will try to get back to each one of you. I am overwhelmed how many people are out of work and even more touch that so many people are willing to help us.

I have found smoothies to be a great source of nutrition since my mouth is raw. I am trying to duplicate them at home on a healthy level, but i just cant get the consistency right. Try try again.

Lots of thanks

Sunday, July 26, 2009

In Need of a Sitter

I'm sorry if you have already given me this info, but i am in desperate need of a sitter until school starts in September. I need a person who can drive, who can come to my house, and can sit on Mondays all day and Tuesdays and Thursdays from 8:30 until 3 ish. If you know of anyone please let me know. I have this Monday covered this week but then i am SOL.

We had a great time at the beach. It was nice to have a week off from hospitals, doctors, and i did cheat some on food. I am paying for it now, but it was great last week. Travis and our sitter "YaYa" were so great. I spent many days just lounging in a chair, reading, and relaxing. My hair is cumming out in massive clumps, but not willing to shave it just yet. Gavin gave me his cold and cough and i have really bad mouth sores from my meds. Not sure how to brush my teeth with out lots of pain, but Travis said my breath might kill someone so i need to figure something out. Not feeling so great today, but need to get to Whole Foods to make my chicken broth so i don't become frail, sickly looking and bald.

We are off to Emory for treatment tomorrow. Hopefully i can get the mouth sores under control.

Hugs and Kisses

Wednesday, July 15, 2009

Day Three

Things are going much smoother at Emory and my heart infraction is looking better per the cardiologist. Still need to see the doc about some other heart issue, but the nurse wasn't sure what it was. We are headed to the beach for our annual trip with Travis' family. I love that we are at the beach every year for my birthday. It makes it so special. We also have some friends coming over to stay a few days and our sitter is going so I am very excited. We were just realizing how much easier it gets every year that the kids get older. Sammy packed for herself and we don't need any baby stuff this year, YEAH. We can actually fit the sitter in the car this year. The alternative treatments are going so great. Although I spend about 18 hours a week at the doctors, i have so much more energy than last time. I think i might be loosing my hair, but I'm not barfing so always good things coming my way.

I wanted to thank everyone again for all your donations to help me fight this disease. The bills are out of control, but with all your help they are manageable. Also to all those who did not get a thank you note we did attempt, but about 20 got returned. Please accept our sincerest apologies.

Much love, Laura

Monday, July 6, 2009

Day two of Trial

Today went much better than the first day. We were able to cut off four hours since we didn't have to see the doctor. The meds are not making me sick, just waiting to see if my hair is going to fall out., so sad if it does. The only real issue at the moment is the steroid hunger. I am having the same grumpy, starving feeling as before. I had to give in and just eat normal food today. I will keep eating my really healthy food the rest of the week and give in to temptation on Mondays. I have to fast before my blood work and then don't eat until 2 ish. You add the steroids and i am an eating machine. I even had sugar today, OMG i feel so guilty. It is kind of hard to find a fast food restaurant that servers all organic, no sugar, no dairy, no wheat or gluten, no alcohol, and only grass feed meat. I just have to do my best and am doing really good so far.

Not sure if i mentioned in the past posts, but we found an alternative to this treatment if i get kicked out of the trial due to my heart or i decided to back out my self due to my heart. My ejection fraction rate is what is giving me the problems http://www.answers.com/topic/ejection-fraction. Mine went from 69% a year ago to 50. I saw the cardiologist on Thursday to get a baseline so he can monitor my heart rather than the trial telling me i am still fine. Don't have much faith in "their eyes." Anyways I found a method called IPT http://www.answers.com/topic/ejection-fraction. It uses less chemo and goes to the cancer cells instead of all the cells so it keeps my immune system in tact to help fight the disease. It sounds wonderful and it is, but it is not FDA approved and traditional doctors are scared of it, but it they have no more options for me what do i have to loose. I have spoken with several patients that have done it and they love it and it is working. I feel much better that i have options now and wont have to just keep searching for new trials if this one fails.

Had a great forth in the mountains with our friends. Hope yours was great also.

Much love