Holy Cold! Right now it is 7 and feels like -9. Tomorrow's high is 1. Good thing we are not outside at all.
Some hiccups have happened in our visit regarding it being an out of network facility. We have been talking to United Healthcare and the hospital constantly for the last two days to figure out exactly what our out of pocket expenses are going to be. So in the meantime we had all the tests cancelled, which is not that big of a deal since we really needed to wait another month (the end of 3 cycles of Xeloda) in order to see if the chemo is working. We might also be getting all the tests done in Atlanta and bringing the scans up with us. They are working with us a ton.
That said, we have continued to be impressed with every aspect of this hospital. Yesterday we met with the Naturopath, who prescribes vitamins and mineral supplements to increase the absorption of the chemo and help the organs recover faster as well as helping with the side effects. One thing we learned that really upset us was the Xeloda is supposed to come with B6 in order to help with the hand and foot cracking, this was not even mentioned to us by our doctor in Atlanta. Simple stuff that should not be overlooked in our opinion. But that is why we are trying to make this hospital work with our insurance. We even had the doctor we met with the first day catch up to us in line at the cafeteria to find out how everything was going. Not sure that happens at other facilities...at least in our experience at Emory and Northside.
Getting ready to go out to dinner, I think in Kenosha. Laura is pooped since we have been going 100 mph this whole week. Tomorrow is the big day when we meet with everyone to get specific treatment options from the oncologist, nutritionist, and naturopath in conjunction with each other.
Talk tomorrow, ya, you betcha! (think fargo)
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4 comments:
I hope your diner is great!
Thank you so much for taking the time to update.
Thank god there are amazing people out there that do what they do and took the time to go to Med School to know what they do to help people get better.
God Bless~
Love YA HAM
that really pisses me off that your primary oncologist doesn't even think to tell you something crucial like that! some docs are so "been there, done that" that they assume we know what they know.
keep talking to the insurance peeps--i won many fights with my insurance by being up their you know whats and not giving up. i' sure you're already done this/thought about it, but even if they deny coverage for something, get your docs to write them letters. my ins tried to deny covering one of my chemos, and i won that fight. and i'm again sure you know this, and not that it helps up front, but all your out of pocket and deductible stuff should be tax write offs (i'm pretty sure). heck, i bet you could even write off the whole trip to chicago.
enjoy the deep dish, stay warm and keep fighting!
hugs,
juliet
I'm pretty sure I've never felt
-9!!!
I hope all the insurance stuff gets resolved. Seems like everything always comes down to that! Glad to hear the people up there are trying to work with you, though. Sounds like you have found a really good group.
Hope you all enjopyed dinner (how big is Keosha, anyway?)
Good luck tomorrow (today)! Are you confused yet?
Thanks for the update.
Love you guys,
Dad
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