First Day of Trial

We arrived at Emory at 8:00 AM this morning and first thing was to get an EKG, but they didn't have my orders so I went to another building had blood work and got paper work for EKG and went back to get it done. This made me 20 minutes late for my Doctors appointment, but didn't really matter since they made us wait an hour for just a 3 minute visit. We finally go to the infusion room at 10:30 and got in trial ward at 11:40. There were many issues so they didn't start my chemo until 1:00. We finally left at 5:40. It was a very long day with may "issues" that could have been very bad, but of course they covered their asses and made it out to be nothing. My heart infraction keeps getting lower and lower and the meds i am currently taking and the "issue" today will not help this problem in the least. Travis and i are researching other ideas since my last doctor said i would have to get off these drugs if my infraction was below 50 and i was at 50 today. The current trial doctor doesn't seemed to worried but i am not not sure if she is looking out for me or the trial. Don't have much confidence in these doctors. Two huge errors in 3 weeks. Not good odds. Keep praying that Travis and i can made a decision and then be able to manage the process. Thanks for all the text, emails, posts, etc. It is so nice to hear from all of you.
Thanks again,
Laura

As Sammy says, "It Was Awesome"

Not only did we vacation with Shaq, but the weather was perfect. We snorkeled, dived, kayaked, went down numerous water slides, basked in the sun, swam in the eight pools, played in the waterfalls, watched moves under the stars, sailed, ate, drank at the swim up bar, Sammy got her hair braided, slept really well in our amazing room, and had a blast. We are so grateful to our special friend who flew us first class and everyone else who contributed to our amazing vacation. It was so much fun to have a "cancer free" week. Glad to be back and am ready to start chemo on Monday. Travis' dad is so gracious to come again since our sitter is leaving for Cali for the month of July. We look forward to our beach trip in a few weeks, but really what can beat Sammy's dream vacation.

I will post on Monday and let you all know how it goes...

Turks and Caicos

Well thanks to a few friends we are able to take the trip of a life time to Turks and Caicos in the Caribbean and all of us get to go first class...We are so excited to get away, lay on the beach, and play with the kids. A little worried what i am going to eat, but i hear the fish is amazing. They have a huge water park, it is all-inclusive, and they have child care. Cant wait to post some pictures. Will start the trial when we get back.

First Day...NOT

Got up at 6:15 AM, had the sitter spend the night, trucked 40 minutes to Emory, had blood drawn, saw the doctor, spent the next two hours in a chair waiting for my drugs to come and then got the news...I can't start for another week or so. I was to say the least not very happy. Luckily my friend came to visit while Travis was at work and was able to take me home. Thanks Cindy. I am feeling great and am loving Progressive Medicine. They have given me new life. Will let you know when i will actually be starting the meds. Should be June 22nd or 29th. We will see

More soon

Progressive Med Day 3

Today I went for my first hyperbaric oxygen therapy (thought of you LG) and it was very cool. Sucked in the oxygen, read, listened to my iPhone, and did not get claustrophobic, yeah. Then i went to the sauna, but found out my body is in worse shape than i thought cause i didn't sweat after 30 minutes. Then i went into the kitchen and spent an hour with Lupa. She is one giant ball of knowledge. I spent an hour at Whole Foods and had one guy help me for most of it. It is a little difficult finding very specific things. Tomorrow i am going to the farmers market to find free range organic chicken and unpasteurized milk. So excited. Feeling great today, but a little tired after my adventure.

Will have more to report soon., Loli

Progressive Medicine Day 2

I received so much information today, i am not sure where to start. I went from re-writing my will before the appointment to telling Travis i think i can do another Ironman in a few years. This place is so thorough i am blown away. My neighbor was kind enough to go with me and the appointment lasted 6 1/2 hours. Everyone was so helpful and i got to meet the oncologist whom i loved. He is a former radiologist oncologist who realized there was more to life than writing scripts. After 30 years he went back to school and is very knowledgeable in alternative treatments. He even gave me some great info about MS for my dad. A very exciting day and I feel so great about my future for the first time since the new PET scan results. So thank you all for helping me get the extra care i need. I am extremely grateful to have found an even better place than CTCA.

Hugs and kisses
Laura

Progressive Medicine

Today i went to a place like CTCA, but they don't do traditional meds. Not in love with the doctor's bedside manor, but if i can get some alternative care here then I could save some time and money. They are going to test me for everything under the sun. It will be nice and scary to see how many toxins are in my body. I read this, and the Dr. confirmed it, but children are born today with 300 toxins in there body (TJ i thought you would appreciate the knowledge). Anyways, they are going to help my body get in better shape to fight this disease and all the crap they are about to put in my body. The family is off to eat and i am off to watch them.

Have a great long weekend.
Laura